Large number of STIFF-PERSON SYNDROME (SPS) patients from Europe, America and Australia have already been treated successfully.
What is Stiff-person syndrome (SPS) and how does HSCT Treatment help ?
Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms. Muscular rigidity often fluctuates (i.e., grows worse and then improves) and usually occurs along with the muscle spasms. Spasms may occur randomly or be triggered by a variety of different events including a sudden noise or light physical contact.
Researchers don’t know the exact cause of stiff person syndrome. But they think it’s an autoimmune condition, a condition in which your immune system attacks healthy cells for unknown reasons.
SPS causes progressive muscle stiffness and severe muscle spasms that can lead to chronic pain, falls, and loss of mobility over time. In some cases, spasms are so severe they can cause falls, broken bones, and dislocated joints. While this rare condition is not fatal, its symptoms can dramatically affect a person’s quality of life.
Treatment options for SPS are limited, and many patients do not respond well to conventional medication therapies such as. In recent years, Hematopoietic Stem Cell Transplantation (HSCT) has emerged as a promising treatment option for Stiff-person syndrome (SPS).
HSCT is a type of bone marrow transplant that involves removing hematopoietic stem cells (HSCs) from the bone marrow and transplanting them back into the patient after administering high-dose chemotherapy. HSCs are the cells responsible for producing all the different types of blood cells in the body, including red blood cells, white blood cells, and platelets.
The goal of HSCT in Stiff-person syndrome (SPS)is to “reset” the immune system by removing the damaged immune cells and replacing them with healthy ones. This can help to stop the autoimmune attack on the nerves and halt the progression of the disease.Request a Call Back
How does HSCT for Stiff-person syndrome (SPS) work ?
In a typical HSCT procedure for STIFF-PERSON SYNDROME (SPS), the patient undergoes a series of tests to determine their eligibility for the treatment. This includes a complete medical evaluation, imaging studies, and a series of blood tests to determine the patient’s overall health and to identify any underlying health conditions that may affect the success of the procedure.
Once the patient is deemed eligible for HSCT, they undergo a period of high-dose chemotherapy to prepare for the transplant. This involves administering high doses of chemotherapy drugs to destroy the patient’s existing immune cells. After the chemotherapy is complete, the HSCs are removed from the bone marrow and are then reinfused back into the patient.
The recovery period following HSCT is 2- 3 weeks and the patient may need to remain in the hospital for 30 days. During this time, the patient will be closely monitored for any signs of infection or other complications, and they will receive supportive care to help them through the recovery process.
How does HSCT benefit Stiff-Person Syndrome (SPS) patients ?
One of the key benefits of HSCT for STIFF-PERSON SYNDROME (SPS) is that it can provide long-term relief from the symptoms of the disease. In many cases, patients who undergo HSCT experience significant improvement in their symptoms, and they may even experience complete remission of the disease.
HSCT is now considered a promising treatment option for STIFF-PERSON SYNDROME (SPS), and it is being used with increasing frequency to treat patients with this condition. If you or a loved one is living with STIFF-PERSON SYNDROME (SPS) contact SafeMedTrip.com Helpdesk for an expert opinion from top specialists at our world class hospitals in India
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Patient Testimonials – What People Say about us
More than 1000 International Patients have benefited from HSCT in India.
“I was obviously quite nervous but my confidence was high and I convinced myself that I had made the right decision. I am now 1 year post transplant, and I now know that I did make the right decision.
Immediately on arriving in India, many tests were done on my whole body and, once the medical team were wholly satisfied with my strength and physicals, on 1 August 2017, I went through the actual HSCT procedure. The medical team visited me daily and insisted that they were there to help me and I wasn’t to unduly worry about this treatment. I didn’t, and I was placed on a special diet to maintain my strength. My son was given a uniform to wear to avoid any infections and I was monitored several times a day to check on my health.
Without a doubt, I am happy that I had the transplant and that I had it done by hsct specialist, Artemis Hospital, New Delhi. If anyone is thinking of doing HSCT, it is important that you do your research and are happy with your decision. I have no regrets, my EDSS was 6.5 before transplant and although it has only improved slightly, I am able to walk without any aid other than my stick, which I was not able to do before HSCT. I make sure I do exercise each and every day and I am overall happy with my recovery thus far.”
“Linda discovered that she had the disease in 2007, when she was 24. She went to the doctor because she sometimes saw double. Two years ago, her health deteriorated rapidly. The supermarket 100 meters away was too far to walk .Linda came to India with her friend Leone as her attendant who is also delighted with hospitality and comfortable facilities at Triple Hepa Deluxe room where both of them stayed for 30 days at World class Hospital in India.
My living room is my living space, I’m quarantined there. But that’s okay, I feel so incredibly good,” says Linda. On April 2, she got her stem cells back. “I see that as my birthday. The treatment has been intense, especially the chemotherapy. “Luckily my best friend Leoni was there.
She was my support and rock and could sense what I needed. It was a safe feeling that she was there. Now my left leg can go straight ahead again. “No swing or other tricks to get him forward. “
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